![\"Umbilical](\"http:\/\/i1156.photobucket.com\/albums\/p577\/siapin\/2012-01-27233021.jpg\")
<\/p>\nToday was a hard day for us emotionally. \u00a0There was a bunch of unsuccessful weaning of medications, as Jane responded with higher heart rate, as well as dismal blood measurements. \u00a0Blood is qualified using a test called \u201cblood-gas\u201d, measuring the pH, Carbon dioxide, and 4 other numbers. \u00a0They draw blood approximately 4 times per day for \u201cblood-gas\u201d tests. \u00a0This is the reason right now for her current blood transfusions, because she can\u2019t produce blood as fast as they\u2019re drawing it from her.<\/p>\n
The nurse tonight had to remove one of Jane\u2019s intravenous lines, which was run in her belly-button, 14 cm up towards her heart. \u00a0The line began failing, so they decided to remove it rather than risk infection. \u00a0The line came out without breaking ,which would have been a big problem. \u00a0Thank God for that little plus for the day.<\/p>\n
However, the problem with this is that the respiratory therapist needs to draw Jane’s blood 4-6 times per day for “blood gas”, and now that she doesn’t have the UA line, they need to get it with a needle. I hate watching it.<\/p>\n
<\/p>\n
I was talking with cardiologists this morning about their ideas of a possible surgery, which they still want to wait and watch for a couple weeks. \u00a0One of the possible procedures they are considering for Jane would need to be done by a heart surgeon specialist, that specializes in this specific surgery. \u00a0This means CHOC would be putting us on a medical plane up to Stanford for this specialized surgery. \u00a0This was just a thought brought up, we just HOPE it doesn\u2019t happen. \u00a0we really want to avoid\/postpone surgery as long as possible.<\/p>\n
One of the doctors paid me and Jane a visit privately, giving me much needed reassurance, and letting me know that they are trying their hardest. \u00a0Apparently we are giving them reassurance and are making their job easier just by showing we care so so so much about Jane.<\/p>\n
We were able to go out on a friday-night date, and it was a wonderful breather, just to get out, and try to take a brake from this mental drain. It was so hard leaving Jane though. And my mom got to babysit Jane for the first time.<\/p>\n
In other news, today is Mark Beliakoff\u2019s 29th birthday. \u00a0Happy bday and congrats on a huge engagement.<\/p>\n","protected":false},"excerpt":{"rendered":"
Today was a hard day for us emotionally. \u00a0There was a bunch of unsuccessful weaning of medications, as Jane responded with higher heart rate, as well as dismal blood measurements. \u00a0Blood is qualified using a test called \u201cblood-gas\u201d, measuring the … Continue reading